Kids Have Cancer Too!!

Today was another day filled with appointments! I'm hoping things will be more calm next week when we start at the Proton center. If you're wondering about my headline it's because I have been feeling a little irritated this week when we're in the main hospital. MD Anderson is huge and full of cancer stricken adults but not a lot of sick kids. The areas that mostly service the peds patients are awesome and I can't say enough good things about them. However, the areas that are not use to dealing with the kids are not good at dealing with them!! We have had to wait at least an hour for each of her appointments- no toys or explanation as to why they're making her wait. By the way we had to starve her on Mon. for her MRI for 5 hours and they gave us a pager so she could cry somewhere other than in the office that was delaying her test. Today we were told that she could not sit in the waiting room where her appt. was because she was a kid. We said very loudly that she was the patient but we did leave. Needless to say, the pediatric clinic is not happy with what's happened to us. For all of you who think only adults get cancer- you're wrong!! With all of this flu business going on the adult patients have decided to try and make the kids as isolated as possible. It's definitely unfair because the kids have the same compromised immune systems they do. Sorry not trying to get on my soapbox but it's really been on my mind this week. I will be contacting the patient advocate to make sure Rachel won't be thrown out of any other waiting rooms because of her age!!

Enough complaining. Today Rach saw the eye doc and her vision is good. I was worried because her hydrocephalus can cause some vision problems. We also got to meet with her pediatric oncologist and nurses and we like them a lot. The nurse had a Hello Kitty scrub shirt on so Rachel immediately loved her. :) After her appointments we decided to get out and do something in Houston. We went shopping at the Galleria and ate at the Rainforest Cafe. We met up with Michael's aunt Pat because she was in town and had dinner with her. Rachel was tired so she had a hard time enjoying herself even with all of the animals around her. Emily is finally old enough to pay a little attention to the animals- she absolutely loved them! I have pictures but I'll have to post later.