Sunday, December 20, 2009

Sorry it's taken a while to update!

Ok, I've gone about a month since my last post. Life has been pretty non-stop since we've been back. It's been much harder getting back into the swing of things than I thought it would be. Emily was not as active before so she's definitely occupying more of more time. Rachel has started her therapy back up for PT, OT, & speech. Before this week, she had been doing great. This week has been a pretty rough one for her. She is having some trouble with her right hand and leg. That side of her body is a little spastic right now and she's having some problems using her hand and also with her balance. I took her to the clinic immediately when I noticed what was going on. They did a CT scan on Friday to check her shunt, everything was fine. They think that the radiation caused some inflammation in her tumor and it's pushing on some new nerves. The problem is already starting to look a little better and it's suppose to go away on its own- hopefully! I can't express how scary it is to see your child having trouble controlling her own body!! We have a MRI on the 7th and that's going to give us a better idea of what's going on. It's too hard to do it now because we won't be able to get a good reading due to the inflammation. She has also been very tired all week. She spent the whole day on the couch and now it seems like she has a low grade fever. We were at clinic 3 times last week and if that fever doesn't get better this week will be the same. I'm really hoping for an uneventful Christmas so hopefully she'll be feeling better in a few days. Please just keep her in your prayers because she deserves to have a fun and carefree holiday!

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